Evaluating Empathy and Understanding in Caregivers of Persons with Dementia- A Pre and Post Assessment of Dementia Simulation Participation

Presenter and Advisor Information

Lukas Wenz, Illinois Wesleyan University

Major

Nursing, BSN

Submission Type

Oral Presentation

Area of Study or Work

Nursing

Faculty Advisor

Amber Kujath

Location

CNS E101

Start Date

4-12-2025 11:15 AM

End Date

4-12-2025 12:15 PM

Abstract

Background: The prevalence of dementia is rising globally. Individuals with dementia rely on informal caregivers for long-term support. Research supports that empathy enhances caregiver well-being. Significance: Caregiver burden can lead to burnout, negatively affecting care quality. Enhanced cognitive empathy reduces burnout and improves caregiver relationships. Investigating interventions that enhance caregivers’ empathy is essential. Purpose: This study evaluates the Virtual Dementia Tour® (VDT), an immersive simulation program, in increasing empathy and understanding among dementia caregivers. Methods: A quasi-experimental pretest-posttest design was used. Participants were recruited via online advertisements and word of mouth. Participants completed a demographic survey and the Empathy and Understanding in Dementia Index (EUDI), which was used to measure empathy and understanding. Participants completed the VDT and a facilitated debriefing and then repeated the EUDI. Paired t-tests were used to compare pre and post results for the EUDI and the three domains of the tool. Results: There was a significant increase in post-intervention EUDI totals (mean=65.5, SD=8.52) compared to pre-intervention (mean=54.6, SD=11.09), t(24)=-6.575, p<0.001. Significant increases were also demonstrated in the empathetic understanding of the impact of dementia domain, (mean=29.7, SD=4.8) compared to pre-intervention totals (mean=22.6, SD=6.7), t(24)=-5.917, p<0.001. Discussion: The VDT increased caregiver empathy demonstrated by significant increases in the EUDI scores. Enhanced empathy may reduce caregiver burden and improve care quality. Study limitations include: a small sample size, mostly female, and all non-hispanic participants. Some participants in the study were non-family caregivers. Conclusions: This study supports immersive simulations for improving caregiving experiences. Specifically, the ability to understand and share the experience of dementia and the ability to provide person-centered care. Further research is needed to explore the applicability in other caregivers.

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Apr 12th, 11:15 AM Apr 12th, 12:15 PM

Evaluating Empathy and Understanding in Caregivers of Persons with Dementia- A Pre and Post Assessment of Dementia Simulation Participation

CNS E101

Background: The prevalence of dementia is rising globally. Individuals with dementia rely on informal caregivers for long-term support. Research supports that empathy enhances caregiver well-being. Significance: Caregiver burden can lead to burnout, negatively affecting care quality. Enhanced cognitive empathy reduces burnout and improves caregiver relationships. Investigating interventions that enhance caregivers’ empathy is essential. Purpose: This study evaluates the Virtual Dementia Tour® (VDT), an immersive simulation program, in increasing empathy and understanding among dementia caregivers. Methods: A quasi-experimental pretest-posttest design was used. Participants were recruited via online advertisements and word of mouth. Participants completed a demographic survey and the Empathy and Understanding in Dementia Index (EUDI), which was used to measure empathy and understanding. Participants completed the VDT and a facilitated debriefing and then repeated the EUDI. Paired t-tests were used to compare pre and post results for the EUDI and the three domains of the tool. Results: There was a significant increase in post-intervention EUDI totals (mean=65.5, SD=8.52) compared to pre-intervention (mean=54.6, SD=11.09), t(24)=-6.575, p<0.001. Significant increases were also demonstrated in the empathetic understanding of the impact of dementia domain, (mean=29.7, SD=4.8) compared to pre-intervention totals (mean=22.6, SD=6.7), t(24)=-5.917, p<0.001. Discussion: The VDT increased caregiver empathy demonstrated by significant increases in the EUDI scores. Enhanced empathy may reduce caregiver burden and improve care quality. Study limitations include: a small sample size, mostly female, and all non-hispanic participants. Some participants in the study were non-family caregivers. Conclusions: This study supports immersive simulations for improving caregiving experiences. Specifically, the ability to understand and share the experience of dementia and the ability to provide person-centered care. Further research is needed to explore the applicability in other caregivers.